"Once our eyes are opened, we cannot pretend we don't know what to do. God, who weighs our hearts and keeps our souls, knows that we know, and holds us responsible to act." Proverbs 24:12



“There are no strangers here; Only friends you haven’t yet met.”- William Butler Yeats





Friday, March 13, 2009

Tired, but posting!

I know that you guys are all expecting Scott's post, but like Jack Bauer, his blogging abilities are just not quite there yet. Poor guy spent almost 1.5 hours this morning putting his thoughts together only to find out when he was done that something had gone wrong, and *POOF* it was all gone. He will be writing it again tonight. I did not get to read it all, but the little bit I read, definitely was my sweet hubby's humorous writing. He's very witty.

Now, onto some Kai stuff. WHAT A DAY!!!!!!

It's a bit complicated and way too long for my mind to even put into words right now, but needless to say we spent 3 hours demanding that our child be scoped by an ENT team, given a diagnosis to the obstruction, and have the problem corrected. That's why we were flown here. That's basically all we want. Simple, right?

Not really. Not when egos enter the rooms before the doctors. Without too much detail, at about 1 p.m this afternoon a cleft surgeon walked into the room, looked into Kai's mouth as he was held down, screaming at the top of his lungs with body flailing all over the place, and then told us that his VP flap (corrective palate surgery done 1.5 years ago) was the obstruction. It would have to be taken down. No scope. No nothing. Just a very renown doctor looking into a mouth for less than 3 seconds and never expecting the patient (or parents of the patient in this case) to question how he arrived at his outcome. This was our afternoon. All hell pretty much broke loose at that point.

We were told that Kai would be seen by an ENT and would be scoped, during the surgery that the world renown doctor was performing. That wasn't gonna fly. And every time the words "world renown" were thrown around it was making my skin crawl.

So, being the Mama Bear that I am and having Papa Grizzly protecting his cub, we finally said no way. We were able to set up an appointment with an ENT this afternoon. They did his scope and we found the obstruction. It was not the flap that his surgeon had created, it is a huge mass of overgrown adenoids in the back of his throat that have seemed to take over.

He is scheduled for surgery on Monday, although we do not know the time yet. I'm praying and hoping to be on our way back home by Wednesday. I miss my kids more than you could ever imagine.

Kai has been poked, probed and beat up more than a little guy ever should be. I can't wait to get him out of here. He sees a white coat and flinches.

I also wanted to say a huge-we-will-never-forget-your-kindness thank you to our wonderful friends, Chris & Ame from ...for such a time as this and Aus and Marie from The Aus Side of Life! for providing an apartment (walking distance from the hospital) for us while we are here. We have family in town, but due to logistics and not wanting to be further than a few steps from Kai, it's impossible for us to rest our heads there. Tonight, I've given up and have decided that my body needs sleep. I can't fight it anymore. I will be heading that way in a bit and sleeping a full 8+ hours in total quiet. THANK YOU! We love you guys and are blessed to call you friends.

Scott will be re-posting his helicopter version later tonight.

Kai is now asleep and resting peacefully. A few more days and we will be home, God willing, with a little boy that can breathe on his own and this whole nightmare will be over. Please continue your prayers, they are being felt more than ever now.

I promise pics and video tomorrow. Really. I. mean. it.

Blessings filled with love.

14 comments :

Michelle said...

Glad they got to the bottom of it and it will be fixed soon. We'll continue to keep you all in our prayers and look forward to hearing you're all back home, safe and sound.

Blessings!

geminirn said...

So glad you stuck to your guns...you go girl!!!!Praying all will go well from here on end.

Terynn said...

Wow. Egos. First do no harm. Hmmm...

I am glad that God is on our side and that He is for us and that He has the final say (vs. bunches of conflicting dr's opinions).

Can't wait till you are home again. Praying for BOREDOM for your family for MONTHS!! lol

Sara W. said...

Wow...some doctor to just take a quick peek in a child's mouth and then blurt out that the VP flap would have to be "taken down". I DON'T THINK SO!!!!!! He doesn't even know Kai...and thought you as his parents were just going to let him perform major...life-changing surgery on him??? Absolutely not! You and Scott are awesome parents...kudos for standing up to the docs. As parents, that is our job :-) Praying for a speedy return home for Kai..and you too.

Go get some sleep!!

Starla said...

Ohilda,

Wow, I'm gone for a few days and you have quite the time of it. So sorry for little Kai, and so glad that you stuck up for him. Will be praying for you these days.

I've had my own busy few days. Packed up with T and L and headed to Wyoming to take care of my grandkids. So, I have 6 kids from 7 to 3 months. I'm in for a busy few weeks!

Blessings, Starla

Sara W. said...

Oh I forgot to say (I was too upset even thinking about Kai having to go through any palate surgery again) Could you tell??

Anyway...I was going to say that Alligator Alley sounds scary...canals of only alligators...ewww!! I like looking at green pastures with cows roaming along our highways :-)

Sherri said...

Hang in there, buddy! You are in our prayers!

Everything is going to be okay.

The Ferrill's said...

Ohilda you are doing such a good job letting us all know what's going on. You are so kind to update and please know that we are praying so specifically for your family. I am so proud of you, momma bear. I can learn a lot from you, and I am SO privileged to be able to call you friend!
May God's mercy rain down on you, Scott, little Kai, and your little ones at home. When you talk about the "world-renowned" doctor, it makes me think of that praise song...
Holy is the Lord, God Almighty
The earth is filled with His glory
And it's rising up, all around
It's the anthem of the Lord's RENOWN...
HE is the ONLY WORLD RENOWNED GREAT PHYSICIAN, AMEN?
Love you Ohilda! We've got your back here in blog-land.

Angie said...

Way to stick to your Mama Bear instincts! So glad they discovered the problem. We will keep praying!

day by day said...

I am soooo glad that they found the cause! And hooray for you for standing up to those egos! A Mama's instincts are always right on!! Praying for you guys!!

Linda said...

Praying for your little man as well as your entire family. Such a stressful and emotionally draining time. Blessings.

He And Me + 3 said...

Praise the Lord that they found out what it was and that they will be able to fix it. Praying for the surgery to go well. Get some rest Mama Bear. :)

Cyndi said...

Wow. Thank goodness you have kept your head in check (despite the lack of sleep) and demanded what you know to be the correct course of action for Kai. Please know that now that I know about this, you are all being lifted in prayer from here. (a few prayers from Norway shouldn't hurt, right?) His name is in our prayer bowl on our table as a constant reminder to lift him up. I am sending a huge hug your way as well. I'll be thinking of you and praying hard for all involved on Monday. Keep us all updated!

Trish said...

We'll be saying our prayers for y'all! Please, Ohilda, if you need me to do anything here for you let me know, I would be more than happy to watch the other kids if you need me to! Trish

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