I know that you guys are all expecting Scott's post, but like Jack Bauer, his blogging abilities are just not quite there yet. Poor guy spent almost 1.5 hours this morning putting his thoughts together only to find out when he was done that something had gone wrong, and *POOF* it was all gone. He will be writing it again tonight. I did not get to read it all, but the little bit I read, definitely was my sweet hubby's humorous writing. He's very witty.
Now, onto some Kai stuff. WHAT A DAY!!!!!!
It's a bit complicated and way too long for my mind to even put into words right now, but needless to say we spent 3 hours demanding that our child be scoped by an ENT team, given a diagnosis to the obstruction, and have the problem corrected. That's why we were flown here. That's basically all we want. Simple, right?
Not really. Not when egos enter the rooms before the doctors. Without too much detail, at about 1 p.m this afternoon a cleft surgeon walked into the room, looked into Kai's mouth as he was held down, screaming at the top of his lungs with body flailing all over the place, and then told us that his VP flap (corrective palate surgery done 1.5 years ago) was the obstruction. It would have to be taken down. No scope. No nothing. Just a very renown doctor looking into a mouth for less than 3 seconds and never expecting the patient (or parents of the patient in this case) to question how he arrived at his outcome. This was our afternoon. All hell pretty much broke loose at that point.
We were told that Kai would be seen by an ENT and would be scoped, during the surgery that the world renown doctor was performing. That wasn't gonna fly. And every time the words "world renown" were thrown around it was making my skin crawl.
So, being the Mama Bear that I am and having Papa Grizzly protecting his cub, we finally said no way. We were able to set up an appointment with an ENT this afternoon. They did his scope and we found the obstruction. It was not the flap that his surgeon had created, it is a huge mass of overgrown adenoids in the back of his throat that have seemed to take over.
He is scheduled for surgery on Monday, although we do not know the time yet. I'm praying and hoping to be on our way back home by Wednesday. I miss my kids more than you could ever imagine.
Kai has been poked, probed and beat up more than a little guy ever should be. I can't wait to get him out of here. He sees a white coat and flinches.
I also wanted to say a huge-we-will-never-forget-your-kindness thank you to our wonderful friends, Chris & Ame from ...for such a time as this and Aus and Marie from The Aus Side of Life! for providing an apartment (walking distance from the hospital) for us while we are here. We have family in town, but due to logistics and not wanting to be further than a few steps from Kai, it's impossible for us to rest our heads there. Tonight, I've given up and have decided that my body needs sleep. I can't fight it anymore. I will be heading that way in a bit and sleeping a full 8+ hours in total quiet. THANK YOU! We love you guys and are blessed to call you friends.
Scott will be re-posting his helicopter version later tonight.
Kai is now asleep and resting peacefully. A few more days and we will be home, God willing, with a little boy that can breathe on his own and this whole nightmare will be over. Please continue your prayers, they are being felt more than ever now.
I promise pics and video tomorrow. Really. I. mean. it.
Blessings filled with love.