This is Bad Luck Shleprock from the Pebbles and Bamm Bamm Show. Remember how he used to walk around with a little black cloud hanging over his head? Well, I'm definitely not one to believe in "luck". but holy bejeezus....this is nutso.
So, here I am, cautiously optimistic about beginning to pack the bag full of toys and goodies Kai has accumulated during his
Back to packing. As I was joyfully skipping around my little closet (I don't think I mentioned to ya'll that we were moved out of the penthouse suite 2 nights ago) of a room, the general doctor on the floor, one of the ones that needs to sign a discharge order, comes in. He asked about Kai and how he was feeling. Listened to his heart. We discussed the small de-sats last night and then he broke the news. "I'm sorry. We're having problems getting the insurance company to agree to paying for the sat monitor at home for more than 24 hours. We feel a bit uneasy sending him home without one. I spoke to the insurance company myself and they are reviewing it, but I don't know if we'll get an answer today" WHHHAAAAATTT?????? I didn't really yell it at him, but my mind was screaming it.
I then gathered my thoughts and said, "So does this mean that if we don't get an answer today, we are here until Monday at least? Because, as we both know, nothing gets done anymore on weekends." His response was vague. "We'll see. We'll see. Hang in there!"
UGH!!! Can you note the frustration in my voice?
His cleft surgeon had told us not to put all our eggs into a monitor. He said that yes, monitors are good, but they can also be a false sense of security or vise-versa He was right. As Kai was sitting here playing this morning (after the doctor had come by) the monitor alarm went off and it showed he was de-sat'ing down to the low 70's. That would be enough for immediate intervention. Two nurses ran in the room. Kai was on his knees on the bed, pushing Hot Wheels around while saying, "vrrooomm....vrrroooommm!" They said, "I guess he's not in respiratory distress, huh?" Ummm...."NO!!" I asked them to take the monitor off of him since it was blatantly obvious that this one was not working. They agreed.
Now we sit and wait to find out what our weekend plans are.
Please intervene. You know exactly what Kai's levels are. You know exactly if something is wrong and we know with all of our hearts that you are the Great Physician. Father God, we ask for your intervention in this process. We surrender it all to you and place the entire situation in your hands, but most importantly Father, I trust with all my being that you, the creator of this precious child you have blessed us with, love him unconditionally and want the best for him. We raise him up to you and surrender his condition to you, Father. We ask for complete healing so that there is no question whatsover about whether he is still struggling with this issue.
We know Lord that whatever the outcome is, you will be glorified.
We thank you Lord for being in our lives and ask these things in your Holy and precious Name.