"Once our eyes are opened, we cannot pretend we don't know what to do. God, who weighs our hearts and keeps our souls, knows that we know, and holds us responsible to act." Proverbs 24:12

“There are no strangers here; Only friends you haven’t yet met.”- William Butler Yeats

Friday, April 10, 2009

The Nails....and The Nails!

"While we were still helpless, at the right time Christ died for the ungodly. For one will hardly die for a righteous man; though perhaps for the good man someone would dare even to die. But God demonstrates His own love toward us, in that while we were yet sinners, Christ died for us." - Romans 5:6-8

Some nails I am so very thankful for. And. Some. I am definitely not!

Good Friday is a day of mourning, of sadness, of reflection at the injustice that lurks in the dark world that we live in. Yet, our omnipotent God knew. And He loved us so much that He sacrificed His son, His only son, our Lord and Savior Jesus Christ, so that we may have eternal life.

That afternoon when that cross was raised in Golgotha, when our Lord willingly suffered and died for each of us, when nails were hammered into his flesh, after he had been spat on and humiliated for our sins, we had no idea that it would be the greatest gift we would ever receive. My heart breaks at the thought of how Jesus suffered for me, a sinner, on that cross. It breaks when I think of what an offensive, repeat offender I continue to be. Yet, His love for me is so great that He continues to remind me that it's OK. He loves me. His unconditional love is something that I could never be separated from. (Romans 8:35-39) Much like the love I have for my own Bouquet of Blessings. Thank you, Lord!

Now, speaking of blessings.

Around 1:00 p.m. yesterday we were wheeled down to the pre-op. After reviewing every possible scenario with Dr. Hero and the new ENT, which by the way I happen to love, they confidently headed into the OR.

About an hour later, they emerged through the doors of the waiting room where I nervously sat praying and wishing them through.

They smiled and immediately reassured me all was well. Then they asked that I follow them into the conference room. I hate conference rooms. (Conference rooms will always remind of Angel's story.) Conference rooms seem to never be a place for good news.

The new ENT first commented on the fact that the previous ENT who had done the adenoidectomy at MCH did a great job! That was a huge relief. Then they proceeded to tell me about Kai's present surgery.

After scoping and completely going in from nasal cavity down to his airway, they found that one of the "ports" on each side of the flap, which are quite small to start with (on purpose to prevent excess airflow into the nasal cavity) seemed to be the problem. The port (breathing hole) was covered by tissue, therefore leaving him only one side only to breathe in from. When he falls asleep and his muscles relax, that covering tissue sort of flops down over the port, blocking the airway. When the adenoids were enlarged due to the respiratory infection he had weeks ago, it threw him over the edge. Dr. Hero solved this by cutting back about 2/3 of the tissue that surrounded the port.

Is it the answer to stopping the de-sats? We're not 100% sure, but it definitely was a contributing factor. We will now do a repeat sleep study for his apnea in about 6-8 weeks. He will remain on the monitor at home for that time, and is also now on preventative medications (Nasonex and Claritin) daily for an undetermined length of time.

After the doctors left, the nurses called me into the recovery room where my boy was having a raging fit as he was coming out of anesthesia. Oh. My. Word! That's where the other nails come in.

I had meant to clip Kai's nails before leaving Ft. Myers, but in my haste, I completely forgot. As I approached the crib where arms were flailing, screams were shattering glass and eyes were shut so tight that I thought they'd burst, he reached out and literally clawed me. I hadn't even spoken so he didn't know it was me. I immediately retracted. This time more cautiously I approached the crib again and tried to whisper (but ended up shouting for him to hear me above the screams), "Kai! It's Mama. I'm here baby. It's OK!" He then whipped around towards me and before I could jump back, two little hands with outstretched claws fingers dug deep into my arm and left their mark as I pulled back. He reminded me of a documentary I had once seen on feral children.

By then, one of the nurses whose job I had taken over by holding him down, had gone to get the anesthesiologist. Shortly afterwards, he rushed in with syringe in hand and gave him a dose of Presidex, a sedative to allow him to go back to sleep without compromising his respiratory function the way morphine would (not to mention that he's allergic to morphine). The response? NOTHING. The wildcat was still on the loose, attempting to rip off any wiring attached to him, throwing his beloved pillow across the room, pulling off his hospital gown and almost choking himself in the process. Another dose 4 minutes later. Again. Nothing. Finally, the doctor said it was not working, which was quite obvious to those who only really understand medicine in layman's terms, such as moi. He ran out and ran back this time with a syringe filled with Diprivan, a medication used to maintain general anesthesia. He immediately was out. The doctor instructed the recovery room nurses to allow him to sleep it off and not wake him. Which meant we remained in the tiny, frigid cold, dark recovery room for what seemed like forever.

About 3 hours later, I gently spoke to him trying to rouse him without startling him. It worked! He accepted his pillow from me and let me stand by his crib stroking his hair as he came in and out of conscienceness.

We came up to the room where he had some jello, some juice and a dose of Tylenol with codeine for pain.

This morning he awoke happy and for-the-most-part pain free, with the exception of a terrible rash that has covered his body. Yes. The codeine. An alkaloid found in opium that converts into morphine in the liver. Being that he is allergic to morphine, I should've known. They should've known. Right now, I have one very itchy and red little boy sleeping behind me. A little boy filled to the brim with Claritin and Benadryl.

As to the de-sats, assuming the monitor worked properly, we did great last night! The alarm didn't go off once and my keenly watchful Mama eyes did not see any drops in his levels. Praise God!

We have at least one or two more nights here, meaning we should be home for Easter, God willing. I leave you all with some pictures of my boy. Thank you from the bottom of our hearts for your prayers and wishing you all a very blessed Easter weekend.

Heavily sedated in recovery, after his wildcat tribute.

In the pre-op learning how to take apart the blood pressure cuffs...

....and his heart rate leads.

Being my silly boy!

Cute foot-sies with the now very-familiar-to-us oxygen sensor attached.


sara said...

praying that this works!! So glad he is better this morning. my son has had several surgeries and he comes out of anesthesia the exact same way...angry!!! As he got older, that has changed, thank goodness.

praying you are home for Easter!

love you!

Carmen said...

Sounds like they found the missing piece of the puzzle. Here is praying that the doctors have solved all the problems. And for a quick recovery for Kai and for your wounds also.

Have a blessed Easter

Patricia/NYC said...

Praying for Kai & the doctors...so thankful he's in good hands!! Praying they find ALL the pieces of the puzzle quickly!

Loved your Good Friday post...read it right after I returned from services at my Church...I was so humbled during the service, almost to tears...what a gift we have in our Savior!


Mom Of Many said...

Thankful, with you, for the nails and the blood -the sacrifice of the Lamb without blemish...

And praying our sweet little guy home by Easter...

Love from Colorado! xo

Jill said...

Oh that POOR, POOR boy!! I hope you are past ANY more problems!!!
I will pray that you will be HOME on Easter to REST in your home with all those dear to you!!!

Keep the updates coming!

geminirn said...

Thank goodness all went well,hope you make it home and are able to all be together for Easter!!

Hugs to you all!!

Karin said...

So hoping that the doctor fixed the root cause of Kai's de-stats! Praying you are home for Easter with your family. We check into the hospital on Easter for Kate's heart surgery.

lizsheartrevealed said...

Hey Ohilda,
I loved reading your blog about Kai... I'm friends with Amanda because I go to school with Chelsea and crashed the OLOL retreat... know of my prayers!!!

day by day said...

Awww...poor Kai! That must have been so scary for him...and for YOU! I pray this surgery is the solution! Oh, how I hope you are able to be home for Easter!!! I have no idea what I did with your cell #. I lose everything these days...sorry!!

Happy Easter!
love you!!

The Byrd's Nest said...

Poor little Kai....he must have felt terrified. My father woke up in the recovery room violently also....he never recognized me and was very angry. My heart broke for little Kai while I was reading this and for you but now on to healing and recovering from this and I am praying this works so you can all peacefully get some sleep my friend! Happy Easter to you sweet girl.

Aus said...

Hey Lady - just wanted to let you know we're praying for you - hope your wounds heal quickly!! Give Kai a hug for us - and know that you aren't far from our minds - special prayers for you during morning Mass tomorrow!

hugs and love -

aus and co.

Cyndi said...

A blessed Easter to you Ohilda! I have been out of town until last night but wanted to catch up on Kai....I have been thinking of him often, knowing he was having procedures done on Friday. I am so happy to hear that this may be it....wouldn't that be great? That you could take your boy home and sleep every night through? I am praying for that for you. And just a quick mention on your "freezing 58 degree weather" at Sea World. That's summer temps for us here. Of course, I would melt if I ever went to FL...that's a given. :o) My little Easter Lily and I send you and Kai (and the rest of your family) all the best!

Keisha said...

I loved seeing that smiling little face peeking from under the ballon!! That's Kai!
Praying for you guys!!! Love and hugs
ps.. I love your little sunflowers too!! CUTE!!!!

Tracy said...

Hang in there mama! Hope you had a lovely Easter!

Angie said...

Dear Ohilda,

I will be praying for no more de-sats tonight (or ever!) you must be so exhausted. That is good news that you are already back home. Sorry to hear about the allergic reactions. I didn't know that about the codeine converting but that does explain my mom's allergy to both too.
When Ryan had his stitches removed last summer (a week after surgery) he had to be put under general anesthesia again. He was only under about five minutes the second time, but when he woke up he was livid. This went on for about an hour and a half (screaming, kicking, etc) and then he very suddenly stopped screaming and in a very tiny voice said, "I want ketchup." It was only 9:30AM but we found that boy some ketchup!
How is Anna Grace doing?

Hugs and Prayers,

Kristy said...

Ohilda it feels like I have missed so much, my computer has had some huge issues. I am sooo sorry I have not been around. But I see that Kai is doing better and I thank God for that. Wow what a wonderful we serve. Just know that you are in my thoughts and prayers.

Love you, Kristy

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