Yes, folks. Kai did not de-sat one single second last night. Thank you, Lord Jesus!!!!
Linny (Mom of Many), you had me cracking up because you were so right on the button, especially being the first to comment. You said, "...I would love to say ummm he de-sat ZERO times and you stayed awake cause you thought the equipment was malfunctioning..." and that's exactly what happened.
Every 20 minutes or so I'd be startled out of my sleep and have to reach over (Kai's in his little bed next to ours) to make sure he was breathing. Then I'd glance at the monitor and his sat level would read, 98...99....97....98....100....98!!!!!! This went on ALL. NIGHT. LONG! I woke up with a headache, but with a heart filled with praise and thanksgiving! I can't even tell you guys how many times today I've walked around saying, "Thank you, Jesus! Thank you, Jesus!"
Don't know what tonight's gonna be like, especially since it's now 11:00 p.m. and he's already had 4 de-sats, going as low as 79. My heart is breaking, filled with that same sadness and feeling of helplessness. But I DO know that God (and all of you holding us up in prayer) continue to be my strength. I can't describe the feeling. I know I've said it over and over, but it's just a horrible feeling that hovers over you. A darkness. I try to envision our Blessed Mother by his side with her son, our Lord and Savior, reaching down to fill Kai's lungs with air each time he stops breathing. I need that light in the darkness. Dear Lord, please be that light. I need you, Jesus! My boy needs you, Lord! I'm afraid of what the darkness brings. But, I know that you and you alone are God, and you are merciful. May our prayers be Your will.
Thank you all for playing along with my silly "warped" game as my sweet friend, Jill, called it. I am off to pray by his bedside, but for one complete day I walked around with a huge burden off my shoulders, praising God and believing that we are reaching the end of this trial. It felt good!
Love you all and please keep praying for another good night. May these early-into-the-night de-sats be flukes and may we really be on a roll to complete healing!
UPDATE: LAST NIGHT'S FINAL DE-SAT COUNT WAS NINE.
14 comments :
Yea! So glad you lost sleep for THAT reason and not due to waking up for the alarm again and again. I am hoping and praying that there will be no more than the four Kai has already had so far tonight.
that is awesome that he had a great night. Praying for another one tonight.
That is great news, Ohilda! Here's praying for another good night and for some sleep for you, my friend!!
love you!
So happy to hear it! I hope it continues on tonight!!!
Oh Praise the Lord!!!!!!!!!!!!!!! Continuing to pray pray pray!!!!!!!!! May you wake up tomorrow refreshed, head-ache free, and minimal de-sats!!!!!!!!!!!!!
Oh WOW!! I won - Yippee!! So now I see that your twitter says that he has already done it 3 times...well I am over here in Colorado and it is midnight and I'm just heading to bed. I am not too sleepy because of meeting with the insurance adjustor regarding the fire (who is not a fun person to work with - GRRRR!)so as I lay awake I will pray that you are sleeping and the monitors are not alarming...
Love from our home to yours! xo
Ohilda....You ARE on a roll!!!! What's the saying...2 steps forward 1 step back??? You're STILL moving forward, gaining ground. Praise the Lord!!!
Tami already said it - progress is still progress! (and at least you know your equipment is working!) (he says ducking a shoe / coffee mug / PO2 sensor / child....) :>
hugs - aus and co.
AWESOME! I am eager to hear about last night. Praying right there with you!
Keep looking UP!!!!
Blessings and HUGS!
Jill
Praise God! I'm glad you two had a good night. Hope last night was just as great!
Much love,
Becky
Ohhhhhhhhhhhhhhhhhhhhhhhhhhh I'm so relieved! I was afraid it was bad.
Thank You Jesus!
Still praying my friend.
So Glad! Will keep praying for you guys!
PRAYING HARD for you and your family especially sweet Kai!!!
Love,
-Nicole
This is great news!! I am so happy , and it can only get better from here Ohilda.
Love you, Kristy
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