Yes, folks. Kai did not de-sat one single second last night. Thank you, Lord Jesus!!!!
Linny (Mom of Many), you had me cracking up because you were so right on the button, especially being the first to comment. You said, "...I would love to say ummm he de-sat ZERO times and you stayed awake cause you thought the equipment was malfunctioning..." and that's exactly what happened.
Every 20 minutes or so I'd be startled out of my sleep and have to reach over (Kai's in his little bed next to ours) to make sure he was breathing. Then I'd glance at the monitor and his sat level would read, 98...99....97....98....100....98!!!!!! This went on ALL. NIGHT. LONG! I woke up with a headache, but with a heart filled with praise and thanksgiving! I can't even tell you guys how many times today I've walked around saying, "Thank you, Jesus! Thank you, Jesus!"
Don't know what tonight's gonna be like, especially since it's now 11:00 p.m. and he's already had 4 de-sats, going as low as 79. My heart is breaking, filled with that same sadness and feeling of helplessness. But I DO know that God (and all of you holding us up in prayer) continue to be my strength. I can't describe the feeling. I know I've said it over and over, but it's just a horrible feeling that hovers over you. A darkness. I try to envision our Blessed Mother by his side with her son, our Lord and Savior, reaching down to fill Kai's lungs with air each time he stops breathing. I need that light in the darkness. Dear Lord, please be that light. I need you, Jesus! My boy needs you, Lord! I'm afraid of what the darkness brings. But, I know that you and you alone are God, and you are merciful. May our prayers be Your will.
Thank you all for playing along with my silly "warped" game as my sweet friend, Jill, called it. I am off to pray by his bedside, but for one complete day I walked around with a huge burden off my shoulders, praising God and believing that we are reaching the end of this trial. It felt good!
Love you all and please keep praying for another good night. May these early-into-the-night de-sats be flukes and may we really be on a roll to complete healing!
UPDATE: LAST NIGHT'S FINAL DE-SAT COUNT WAS NINE.