"Once our eyes are opened, we cannot pretend we don't know what to do. God, who weighs our hearts and keeps our souls, knows that we know, and holds us responsible to act." Proverbs 24:12



“There are no strangers here; Only friends you haven’t yet met.”- William Butler Yeats





Saturday, March 14, 2009

A Little Look Into My Last Few Days.

(except for the helicopter pictures that will come later when Daddy puts them on the computer.)

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Life really isn't that bad here.

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You mean I could squeeze the whole bottle into your hands?

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Now this is the way to watch CARS.

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I am the coolest dude in this ICU!

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Even if my Mama looks terrible, all tired and rundown, I love her SO much!

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More wires and more tests? Please Daddy, make them stop!

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Showing my Uncle the loot you get when you are in ICU!

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Hanging with my new soon-to-be sister and my biggest brother, Tito!

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Oh yeah! I got these nurses wrapped around my finger.

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I screamed for 30 minutes because I hated that you let them put all this stuff on me to study my sleep. Why can't they just stand there and watch me sleep?


Hi Friends,

My Mama and Daddy told me that all over the world people are praying for me and how much I am loved by so many. I know I'm feeling so much better because you are asking Jesus to make me well. Thank you and please, please don't stop praying. I really miss my home and my brothers and sisters and want to be back with them real, real soon!

Lots of Love,

Kai-Kai

Friday, March 13, 2009

First of all, i'd like to say.....

......IT WASN'T MY FAULT! I had this whole thing done once already, and when Ohilda posted it , it wasn't connected online, and dumped it. So so unfair, especially since she said it was MY fault! Once again, as a good husband, I said, " Sure Honey..... ", and kicked an egotistical arrogant cleft doctor in the shins!! I feel better!

OK, I'm going to do this again! Let's see.. ummmm.. ok, let's start with the ego trip doctors at Health Park, no wait! Ohilda covered that. Ok, its Thursday afternoon, and we're waiting for the nurse crew to tell us when the helicopter is on its way. We've only asked Peggy ( The head nurse ) about 20 times, Ohilda seems to forget we humans have the ability to remember things, but considering the fact the doctors there continued to forget what the last doctor said, I could see her point! God, what a rough time we had!

Anyways, around 2:30 I think, Peggy comes in and says, " I have news for you, they just called from Miami and the helicopter will be here in 20mins.! " Ohilda's tension factor shot up 200%, considering the fact she wanted as much notice as possible so she could drive to Miami to be there when Kai and I landed ( yea! I was on a helicopter! ) ( oh yea, Kai too! ) O gave the two of us a quick kiss, and she disappeared in a flash!

Well, this is where the fun began. As Daddy, it was now my job to keep Kai calm and cool as the transfer was being made from one hospital to the next. So I pushed hard on the helicopter ride. But Kai, the poor kid, he's been through hell, and he's not a dumb kid, he was very wary of everything. It's funny, I noticed with Kai, when he's nervous, he keeps his head still, and will look at everything out of the corner of his eyes, as if to say, " If they can't see me paying attention to them, they won't bother me! " So as the helicopter flew in overhead, I said, " Listen Kai! The helicopter's here! " And he said, "Yeaaaaaaa! " So I was pumped that this might go rather smoothly after all.

It was then that I bent down and looked him in the eyes and said, " Kai Kai, we're going to be moving to another place in the helicopter, and there's going to be a lot of people that's coming here soon. But listen to me, there's going to be no boo boos, OK? Daddy promises, no boo-boos. " He just looked at me, and nodded OK. This is where the first of 4 different doctors in white lab coats began entering the room, making last minute checks and bringing me paperwork. Kai went into a statue mode every time he saw a lab coat. At one point, there was 2 air paramedics, 2 nurses, and 2 doctors in the room. Kai's eyes were darting all over the place! I kept saying to him, " Don't worry, no boo-boos Kai, it's OK. " And he was great..... UNTIL..........

We moved him from the bed to the stretcher, and he was rigid, as expected. But when it came time to lie him back and strap him in for the trip, Kai CLEARED THE ROOM! His primal scream tore off heads and limbs of innocent bystanders..... in the next county!!! I felt so bad for him as I kept saying, " Kai! It's going to be OK! Relax! " Nope! The Air Medic strapping him in had to cling to the stretcher himself for fear of being blown threw the third story window! And we were on the 2nd floor!!!

Finally, he was strapped down ( he didn't fight it , mind you, he just hated to be pushed down to lie down. Every time it happens, he gets prodded or poked or something else evil ) and we began to roll out of the room. Did Kai stop there? Heck no!!! As we rolled through ICU's hallways, Kai casually continued to let us know, " Hey! Guys! I'm just not happy with this! ", as he continued to screeeeeeeam through Pediatrics ICU, down the halls of this prestigious hospital, into an elevator with 5 people ( Kai screamed, and their shadows are all that's left, burned into the elevator's walls, forever ), and through the perimeter ... until he saw the open door with daylight streaming in.

He toned it down a bit, from 500 decibels to 100 decibels, and as we rolled outside to this spectacular yellow and red helicopter, he decided he would spare the rest of our lives, and stop crying. Poor baby!

As we rolled up, the Air Medic opened the helicopter's door, and said," Kai! Are you ready to fly in my helicopter? " , and Kai's eyes lit up! He then gave Kai a toy replica of the helicopter, and that made Kai's day! But still he wasn't speaking, eyes darting everywhere, still wary of the situation. Just then, the Air Medic took out a big syringe full of Kai's IV solution from his flight bag, and I think I heard the sound of Kai's eyes popping out of his head! If you're a Looney Tunes fan like myself, you know what I mean! "POP! POP!"

I said, " No Kai, its not for you, no boo-boos, remember? It's OK! ", and gently pushed his eyes back into his sockets. He just gave me this look. I think its a look Chinese give Americans when you barter price with them in China. That "I'm looking at you, and then I'm dropping my eyes away from you" kind of look. It was understandable, considering half of Florida is in ruins from his screaming.

We strapped into the helicopter, and they offered us headphones for speaking to each other and to block out the loud helicopter noise that was soon to come. Kai looked at the Air Medic and shook his head rapidly. I think if that set of headphones was made of chocolate, he wouldn't have touched them! There was no way this little man wanted anything else attached, poked, or prodded into him.

So we took off, and he started to lighten up when he had his toy in his hands and was looking outside the window. The Air Medic offered him the headphones again, and he agreed! When he put them on, I kept saying, " Kai Kai! We're flying on a helicopter! Woohoooo! ( Hey! I was excited, come on! ) Say Hi so I can hear you Kai! Do you like the ride?" Nothing. Not a word. I tried for another couple of minutes to get him to speak, with no success. I gave in, and continued to take pictures ..... HELLOOOOO! Of course I'm taking pictures! I'm in a HELICOPTER! And of course, if I didn't, my wife would've killed me!

All of a sudden, out of nowhere, Kai says, "DADDY! LOOK AT MY HELICOPTER! WOW DAD! WOW!! " I was like, " Yea Kai! It looks just like this big helicopter, huh?? " He says, " Yes! It's red and yellow too! Like this one!! "

It was at this point that Kai, the wary little boy disappeared, and Kai, the magic gift we brought home from China, kicked in. Since the headphones were voice activated, and the speakers inside played your voice for you, and you'd hear everybody else speaking, Kai began to tell all of us about his boo-boos, about how AJ broke his big toy helicopter at home, and that AJ wasn't getting this one, and how Anna Grace doesn't listen to Mama, and how he was hungry, and then he began to call in an air strike on the Iraqi insurgents living in the Everglades ( we flew over 80 miles of bleak Everglade swamp land ), and to finish it off recited the State of the Union speech to Congress.... without a teleprompter! Let's see ya do that one, President Obama!! LOL!!

He had everyone laughing the whole trip, but until I said, "OK Kai, we're almost there, we're going to be landing soon!" and Kai said in his cute kid voice, " ooooooookayyyyyy ", that it was then the pilot starting laughing, saying over and over again, " ooooookaayyyyyy, ooooookayyyyyy!" Kai was all excited about the landing, as he watched out the windows and laughed.

And we arrived without incident, and checked him into the PICU, where he was bombarded with great nurses and toys and nurses and toys and nurses who all said, "Oh my God! He's so cute!" , and more toys and more nurses who said, "Oh my God! He's so adorable!", and more toys and ... well, I don't think I need to continue, since its yet to stop!

It's now Saturday morning. I spent my first night with Kai as Mama went to the apartment to catch up on sleep. I wanted to say thank you to all of you who are praying for us and my little man, as well as the rest of my clan (I miss my Anna Grace. Amanda and AJ ). And I'm sure I'll be back soon, when Mama lets me out of my cage. :)

Scott ( Who loves his wife dearly ) Bombardier

Tired, but posting!

I know that you guys are all expecting Scott's post, but like Jack Bauer, his blogging abilities are just not quite there yet. Poor guy spent almost 1.5 hours this morning putting his thoughts together only to find out when he was done that something had gone wrong, and *POOF* it was all gone. He will be writing it again tonight. I did not get to read it all, but the little bit I read, definitely was my sweet hubby's humorous writing. He's very witty.

Now, onto some Kai stuff. WHAT A DAY!!!!!!

It's a bit complicated and way too long for my mind to even put into words right now, but needless to say we spent 3 hours demanding that our child be scoped by an ENT team, given a diagnosis to the obstruction, and have the problem corrected. That's why we were flown here. That's basically all we want. Simple, right?

Not really. Not when egos enter the rooms before the doctors. Without too much detail, at about 1 p.m this afternoon a cleft surgeon walked into the room, looked into Kai's mouth as he was held down, screaming at the top of his lungs with body flailing all over the place, and then told us that his VP flap (corrective palate surgery done 1.5 years ago) was the obstruction. It would have to be taken down. No scope. No nothing. Just a very renown doctor looking into a mouth for less than 3 seconds and never expecting the patient (or parents of the patient in this case) to question how he arrived at his outcome. This was our afternoon. All hell pretty much broke loose at that point.

We were told that Kai would be seen by an ENT and would be scoped, during the surgery that the world renown doctor was performing. That wasn't gonna fly. And every time the words "world renown" were thrown around it was making my skin crawl.

So, being the Mama Bear that I am and having Papa Grizzly protecting his cub, we finally said no way. We were able to set up an appointment with an ENT this afternoon. They did his scope and we found the obstruction. It was not the flap that his surgeon had created, it is a huge mass of overgrown adenoids in the back of his throat that have seemed to take over.

He is scheduled for surgery on Monday, although we do not know the time yet. I'm praying and hoping to be on our way back home by Wednesday. I miss my kids more than you could ever imagine.

Kai has been poked, probed and beat up more than a little guy ever should be. I can't wait to get him out of here. He sees a white coat and flinches.

I also wanted to say a huge-we-will-never-forget-your-kindness thank you to our wonderful friends, Chris & Ame from ...for such a time as this and Aus and Marie from The Aus Side of Life! for providing an apartment (walking distance from the hospital) for us while we are here. We have family in town, but due to logistics and not wanting to be further than a few steps from Kai, it's impossible for us to rest our heads there. Tonight, I've given up and have decided that my body needs sleep. I can't fight it anymore. I will be heading that way in a bit and sleeping a full 8+ hours in total quiet. THANK YOU! We love you guys and are blessed to call you friends.

Scott will be re-posting his helicopter version later tonight.

Kai is now asleep and resting peacefully. A few more days and we will be home, God willing, with a little boy that can breathe on his own and this whole nightmare will be over. Please continue your prayers, they are being felt more than ever now.

I promise pics and video tomorrow. Really. I. mean. it.

Blessings filled with love.

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